All4NETS.org Alliance for Neuroendocrine Support Groups!

What is All 4 NETS? This organization was formed to help Carcinoid/ NET Cancer Support Groups in the USA and
 around the world get important information about this disease to share with their members!

What are Carcinoid /NET Cancers? Carcinoid Cancer, part of a group of tumors called neuroendocrine tumors that
 grow in the hormone producing cells, is listed with the National Organization of Rare Disorders. Because neuroendocrine (NET) cancer is considered rare and because public awareness is lacking, the disease has had a low priority for medical research.
Current studies suggest that Carcinoid and Neuroendocrine tumors are not as rare as once thought. Over 11,000
new patients are diagnosed each year.As many as 120,000 patients are living in the US today, AND the number of diagnoses is increasing by more than 5% annually.
Carcinoid/Nets are also regularly overlooked during the diagnostic process. Many patients go untreated for years
and have been told they have another disease or That they are imagining things.. However, due to the generosity
and selfless effort of many people, progress IS being made! If the tumors are found early and you get proper treatment is obtained,a long life is achivable.here are many 20 year survivors living in the USA. Failure to diagnose the disease and provide proper treatment, however, has the most serious consequences.
 
How can ALL 4 NETS help you as a group leader?  All 4 NETS will help you get the proper tools and material to help run your meeting.; This funding allows you, to have guest speakers,and provides supplies. Next,we are a clearing house for pharmaceuticals and medical laboratories educational materials. We have state of the art and up to date
information to share ranging from diagnosing the disease to finding out the latest treatments available to Patients. Additionally, we will post your group meetings on our calendar. Education is key to beating this disease!

Why should we join? It is free to join! This is not a group that tells you how to run your meeting,but rather one
 that helps you only when you ask for it! Use our resources as you need and /or want them!

How can we help make this organization work? Those interested in helping should contact us immediately! You
can raise funds to continue the mission of helping support the groups around the world. Monies raised will be
shared between ALL4NETS and your organization. You may use the money to help with the cost of your supplies
and /or for guest speakers. If you are or thinking of becoming a group leader in your area please join us. Also email
us through the contact page so we may post your information Thank you for your dedication in spreading the word and helping patients receive the care that they deserve and should expect from the vast amount of shared knowledge
from the leading physicians worldwide.

Patients can learn the latest information by visiting carcinoidawareness.org, carcinoid.org.Physician resources include, NANETS.net, ENETS.org, ukinets.org.uk